In all her books she has the ability to really educate her reader and at the same time keeping them engaged in the story. But I really feel she hit the nail on the head. It’s fiction and written, of course, for entertainment.

I think it’s a really accurate representation of the lived experience of Huntington’s disease-for both patients and families. No, but I did receive an advance reader’s copy of the book. Who would have thought I’d contribute to a book by an international best-selling author?ĭid you get to read any book drafts of Inside The O’Briens? I think this just goes to show that if you have expertise in something, don’t be afraid to go out on a limb and offer to share it, because you never know what can happen. While my rationale for reaching out to her was to share my experience and knowledge, truthfully, I never thought she would actually contact me. I’m also a genetic counsellor so I have experience and knowledge around predictive testing. I did my PhD on Huntington’s disease and I’ve worked with a lot of patients and families. We had a few phone conversations and email exchanges over the course of a couple of years. I have great respect and passion for the Huntington’s community, and if there was anything I could do to help make the book a true and authentic representation of their lived experience, I wanted to do it. Given my background with HD, I felt compelled to reach out to her, so I tracked down her publicist and agent and offered to share my knowledge and experience with her.

Lisa genova new book